Webcast: If you can’t make it tomorrow, we’d like to invite you to watch the webcast. Daisy had many friends and supporters around the world for which we are so thankful. In order to honor these relationships we will be streaming her memorial live.
Oh friends, I don’t know what to say… Updating has seemed a task daunting and impossible as our girl lay in her bed at Cottage intermittently crying out in pain, sleeping, and dreamily remarking about the shadows of the birds on the wall.
January 13th marked one month in the hospital. She received two weeks of chemo within a couple of days of going in with abdominal pain and finding two new tumors. She came home for three nights after that and went back in with severe dehydration. The chemo had a much more radical effect on her showing how fragile she really is. We are awaiting her guts to heal and her body to retain nourishment. Needless to say we are devastated. We had hoped our journey across the world would have cured our baby but it is not so.
We are discussing a few options with our doctor, none of which we can make a decision on until we peek inside Daisy’s belly again to see how it responded. Until then we wait and pray and hope. And as our hearts are ripped out and our very insides sear with pain, the principles of life haven’t changed. Parenthood, no, being human, is still an opportunity to love. Every time I rub Daisy’s swollen feet, cool her burning once again bald head, every time I listen to her speak tiny words in the dark of the night or wash more soiled bedclothes, my opportunity remains. To love. This month is not a month I expected, not a month I wish upon any mama… Yet my opportunities to love her abound, and it’s my pleasure to serve her in all the deep pain. I don’t know what the future brings. Today we were able to leave the hospital and continue her care at home, but we need a miracle, more than ever before. While we yet remain, we choose to enjoy our girl because she is incredibly enjoyable.
Please pray for us as we make agonizing decisions never intended for parents to make. Pray for a miracle. Pray for relief of our girl’s physical pain. And pray for stamina for the rest of us to go forward in strength and courage.
Daisy is as courageous as ever, full of grace and maturity as she voices her needs without ever whining or being rude. She once again is saving her downy hair for the birds by our house, hoping as they have spring babies they can enjoy her softness.
One last thought, as a parent and as a human being; opportunities to love surround us. When we take those opportunities time seems to stop, and in that timelessness is where memories are made and beauty is beheld. We will never regret rising to the occasion. I believe it has something to do with the fact that God is love and we are made in His image. Suffering isn’t what we are made for, but it can be fruitful in ways we could never imagine.
We love because He first loved us.
I appreciate the ways so many of you have loved and served us through the shadows, prayer, dinner, financial help for treatments, letters, teddy bears. You have helped ease our suffering in many ways.
Daisy was admitted to Cottage Hospital on Thursday, December 13, where her doctors discovered 2 new cancerous tumors in her abdominal region. One is at least the size of a large grapefruit and is connected to major arteries and organs. The other is smaller and on her liver. Both are considered inoperable.
The tumors are so large they are impacting blood flow to major organs. The doctors feel they must begin chemotherapy immediately (tomorrow) to reduce their size.
The options for additional treatment at this time are very limited and not promising. The Merrick family is currently evaluating all of them and pursuing every viable possibility. They desperately need your prayers for wisdom, strength, peace and God’s leading and nearness.
Most importantly, Daisy needs your prayers for healing. Apart from merciful, supernatural intervention from God, Daisy’s prognosis is bleak.
In all these things, God’s grace is abundant and sufficient.
Britt wants you to know that he is experiencing God’s grace in a profound way and feeling an incredible amount of peace and strength and even joy. Additionally, he reports that God seems very present and is discernibly with him. Please pray that the whole Merrick family would experience these things continually and in abundance.
The family has an abundance of counselors right now with all the pertinent information available to them. We so appreciate your prayers and allowing the family some space and time to pursue Daisy’s well being.
In the next few hours (as I write it is almost 8AM in Israel), Daisy and her parents will be having the first consultation with the doctor in Israel. Please pray for wisdom, discernment, peace & unity as they take the first steps towards deciding Daisy’s treatment.