Pray For Daisy

Month

January 2010

5 posts

1/31 Update

Hey Guys,

Kate here.  Some stuff has happened since the last post, some sweet answers to prayer, some spiritual growth, some heartache, some elation….  Okay, so, Daisy’s appointment went great.  Our prayers were answered!  Her ANC went up sufficiently and all her other counts looked good too.  She took it like a rock star, and I’m so proud of her.  So that means we only have 4 treatments to go!!!  Woo hoo!!!!!!


Last Tuesday she had an ultrasound and chest x-ray scheduled.  It’s standard protocol in her treatment to check for nodes on her lungs and other masses or pockets of weirdness in her body at this time.  Nonetheless, I was nervous going in.  I prayed that morning, “Lord, give me the strength to praise You no matter the outcome.  Increase my faith to be able to deal with whatever the results are.”  Even after the initial diagnosis, the radical surgery, the nights of pain and crying, watching my baby writhe in agony regardless of the morphine and epidural, I still need God’s strength to make it every step.  Even through a routine thing like this.  I know that our minds play a huge part in how we deal with things.  Charles Swindoll says “I’m convinced that life is 10% what happens to you and 90% how you deal with it.  Attitude is everything”.  I purpose to have an attitude of thanksgiving, of reliance on my Maker.  I can’t change anything, but He can carry me through.  He deserves my gratitude.  Philippians 4:8 has been such a sweetly rebuking and directing passage for me.  ”And now, brothers and sisters, one final thing.  Fix your thoughts on what is true, and honorable, and right, and pure, and lovely, and admirable.  Think about things that are excellent and worthy of praise.”  So, with prayer and thanksgiving, I set my mind on things lovely, things worthy of praise, things that are true.  Try it sometime, you will receive the peace which surpasses all understanding.


Back to the deets:  Daisy has no problem with these things (scans, x-rays, etc.) except the part about fasting breakfast so they can have a clear picture.  She was up the night before mourning the loss of her would-be future breakfast.  Like mother, like daughter….  There was a beautiful bowl of fruit in the imaging office and Daisy wanted to know if she could get one “to go”.  She was so precious in the x-ray room, they put one of those lead “skirts” around her waist to protect her organs.  She looked so tiny and precious with her giant beanie, lead skirt, and skinny legs so sweetly cooperating with the procedure.  When they took it, I tried not to look at the picture of the lungs.  What if I saw something!  I was stuck between wanting to look, but at the same time hoping that if I don’t look it would make it go away.  Crazy, but I know you’ve all been there.


The ultrasound was worse.  It looks like chewed up gum in a nest of seaweed swimming in ink, am I right?  The technician was a sweet woman with a beautiful accent (she sounded Dutch).  She would focus in on blobs and take pictures.  There were several black spots, then she added a heat-sensing color to it and took more pictures.  The only thing I recognized was her sole beautiful kidney.  I tried not to look, but caught myself sneaking glances.  Daisy was adorable as usual, and we walked out with a shiny green apple.


The doctor didn’t call me that day, nor the next.  Wednesday night starting at 10pm, Daisy was up, doubled over in pain and crying.  She was experiencing severe stomach pain and it lasted all night.  We prayed over her and I tickled her back until 3am, then needing a break switched with Britt.  Stomach pain is not on the list for “immediate” call in to the pediatric oncologist, but by 6:45am I called anyway.  He said bring her in.  She started to throw up about 10 minutes later and consistently threw up for the next 3 or so hours.  We put in the call to pray with several friends, then at about 11am, she was up!  She was ready for food, ready to play, and it was as if it never happened!  We called the doctor, and they concluded it was just a stomach bug that’s going around.  As the conversation was winding down, I got the nerve up to ask about her imaging results.  I was put on hold for what seemed like eternity (probably 30 seconds) and spoke with a doctor.  They came up clear!!!!!!!!!!    Yay!!!!!!!!!!!!!!!!!!!!!!!   Phew!

That was our week.  I’m pooped!  So eventful, so thankful.  I have heard from so many of you who are going through similar trials.  This is why I give so many details, so much of what’s going on inside my head, things I’ve learned.  I pray that any of it can be of encouragement to you, to hopefully help you deal with hardship.  I pray for you to have the strength to praise our Lord Jesus, regardless of circumstances.  He gives and takes away, but we choose to say blessed be His Name.   Be encouraged.

Hebrews 11:27  He kept right on going because he kept his eyes on the One who is invisible.

Jan 31, 201016 notes
Jan 20, 201052 notes
1/15 Update

Good Evening dear friends!
So, here’s the scoop.  Daisy was a superstar at her appointment today, totally brave, hardly any tears!  They whisked her precious blood away to see if she’s able to receive her chemo while we went out for a chai latte.  It turns out that her ANC was not high enough to get the green light.  It had actually barely raised since last week.  Now, because all you wonderful people are AMAZING and diligent I rest in the fact that she needs another week to catch up and that God has ordained her ANC count.  Proverbs 16:1 “We can make our own plans, but the Lord gives the right answer”
So, it looks like we’ll enjoy the week, not worry, and maybe have Daisy try sticking her head out of the car window, because I bet it feels really good!  Not for long, though, back on your knees friends!  We eventually do need to get the job done!

By the way, thanks for letting us be so forthright and transparent.  And for caring about the details!  Oh yeah, and the doc thinks the tummy ache was just that.  No big deal.  Stoked about that…

A precious:  Last Tuesday I subbed at Daisy’s school in her class.  On our way to school I took prayer requests from the carload such as kindness toward friends, focusing on classwork, etc.   Daisy says to me, “Mom, I’m just going to focus on you, because when I stare at you I think comfortable thoughts.”  Does it get better than that?!?

Jan 16, 201014 notes
Jan 15, 201054 notes
1/7/10 update

Today Daisy had a CT scan, which searches her body for any other spots or masses. Praise God it came up clear! She has scarred pretty significantly though where her kidney used to be, but the doc says it’s shrinking, so that’s good. Her ANC is the lowest its ever been today, (ANC is white blood cells and basically how strong her ability to fight off infection is) and needs to come up before her next dose of chemo next week. so, we could use prayer for that. By the way, she will be receiving Chemo through May.

Another happy, her hemoglobin came up again!!!! Thank you so much for praying!!!!!

Also, her hair is swiftly coming out. The last week she’s lost more hair than ever. For me, it’s an emotional thing. I’m not sure why, but it hits me in a tender spot when i see hundreds of hairs on my daughter’s pillow in the morning. It’s expected for cancer treatment, but i think its such a visual reminder of the radical-ness of the disease. She seems to be taking the fact of baldness pretty well, but this morning she definitely didn’t enjoy the sight of the hair everywhere. Sigh…. I guess we girls are just emo! (but still pray for adjustment!)

Britt and I were talking a few nights ago, taking stock of our lives. We realize that for much of our marriage, our lives have been neat and pretty. Beautiful town, amazing friends, loving families, thriving church. We acknowledge that we are blessed in more ways than we thought possible. This year has been a whopper, and now are lives are no longer as pretty, but there is a deep beauty forming through it all. I prefer the beauty that comes through the painful polishing of tough times.

I want all you Daisy blog readers and prayers to know that we have never felt so carried through a hard time like this before. I feel like I can rest, knowing that there are so many petitioning on our behalf night and day. You are all so appreciated.

Daisy moment: Daisy was visiting a dear friend of hers and they were painting and being artistic. Daisy tells her buddy’s mom that she would like to paint a forest. Buddy’s mom was expecting squirrels, happy little forest creatures. You know, little girls love things like winged ponies, bunnies, etc. But we know our fireball has a little more hutzpah than that…. Daisy ends up painting a giant vicious looking grizzly bear and a hunter hiding behind some bushes holding a rifle! ah, my sweet little girl….

Jan 7, 201020 notes
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